Nikolytė was born at 24 weeks. She spent 3 months in hospital. She suffered a severe strokewhich has left painful consequences. Today she has cerebral palsy, hydrocephalus and intractable epilepsywhich makes it much more difficult to access.
Drug-resistant epilepsy, who regularly brings Nicole back to her sickbed when she needs oxygen and resuscitation to stop seizures. Nicole is scheduled for treatment with psychotropic drugs, which can leave her apathetic and sleepy.
Her parents are not backing down. They are fighting the girl's illnesses. Seeking innovative treatments for medicines not registered in Lithuaniato free your child from hourly seizures and help them learn to walk again. I have been able to find information that such drugs are available. We are currently in correspondence with several clinics and collecting documents for a remote consultation.
Despite these challenges, Nicole is a strong girl - she is an intelligent child who smiles a lot. Dreaming of walking on your own two feet.
Epilepsy robs the girl of her strength. Today, Nikolytė walks just one metre. Extra per child requires complex rehabilitation with medical supervision, advanced measures. I managed to find one in Warsaw. New technologies help to keep what a child learned before epilepsy (at the age of four).
In Lithuania, it is necessary to keep you in continuous physical shape.
Although the condition is difficult - both legs and an arm are paralysed - we have hope and possibilities. A great gift opens them up: THE GIRL IS SMART and is therefore viable. It talks a lot about love and friendship. Willing to walk on her own two feet. And she can. She had already started walking.
If you would agree to join us on our journey, we would be extremely grateful. If we have your support, we will travel abroad to find the right drugs to treat epilepsy, innovative orthopaedic treatment, advanced living and walking aids, and comprehensive rehabilitation programmes get her back on her feet and restore what the seizures took away.
Find out more about our story on Facebook Nicole's smile. There I blog about her journey.
With gratitude,
Nicole's mother,
Victoria

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Donors
Anonymous
10,00€
Rima
25,00€
Anonymous
10,00€
Vaida
100,00€